Public Involvement Workshops

During the first week of July 2015 saw our first public involvement workshops. Twenty-five members of the public from as far afield as Wales, Cornwall, Sussex and the West Midlands met with John Terry (Centre Co-Director), Jo Welsman (Engaged Research Fellow) and Wessel Woldman (PhD) student in open discussions about what it is like to be diagnosed with and live with, or care for someone with dementia, epilepsy, or schizophrenia. Others contributed via phone and email.

We also discussed how the modelling work of the Centre might be used to develop new diagnostic tests. The inspiration and insights we gained from these workshops will be invaluable in helping us develop our research in ways that will be most relevant to people living with neurological conditions. 

Researchers at the Centre have recently received funding to explore and develop their research into long term neurological conditions.

Our recent research shows promise for new methods of diagnosis from routine clinical measurements such as electroencephalography (EEG) which measures the electrical activity of the brain. This may lead us to new approaches for diagnosing neurological conditions in a GP surgery or even at home.

It is essential to us that we develop our research in collaboration with people who live with these conditions and their supporters or carers. We hope that if we understand better how these conditions are experienced from the very early signs and symptoms through to a formal diagnosis (or sometimes even misdiagnosis), we will be able to shape our research in ways that are relevant to both the people experiencing these conditions as well as to clinicians and health professionals involved in their diagnosis.

This workshop was held in July for people who have either had a diagnosis, or indeed misdiagnosis, of epilepsy, memory loss/dementia or schizophrenia.

Details of the workshop

Details of the workshop will remain on this website for reference:

Epilepsy workshop: For more information, please download the epilepsy flyer.

Memory loss and dementia workshop:  For more information, please download the dementia flyer.

Schizophrenia workshop:  For more information, please download the schizophrenia flyer.